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Decision-making in the critically ill neonate: cultural background v individual life experiences.

机译:重症新生儿的决策:文化背景与个人生活经历。

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摘要

OBJECTIVES: In treating critically ill neonates, situations occasionally arise in which aggressive medical treatment prolongs the inevitable death rather than prolonging life. Decisions as to limitation of neonatal medical intervention remain controversial and the primary responsibility of the generally unprepared family. This research was designed to study response patterns of expectant mothers towards treatment of critically ill and/or malformed infants. DESIGN/SETTING: Attitudes were studied via comprehensive questionnaires divided into three sections: 1-Sociodemographic data and prior personal experience with perinatal problems; 2-Theoretical philosophical principles used in making medical ethical decisions; and 3-Hypothetical case scenarios with choices of treatment options. SUBJECTS AND RESULTS: Six hundred and fifty pregnant women were studied. Maternal birthplace (p = 0.005) and level of religious observance (p = 0.02) were strongly associated with the desire for maximally aggressive medical intervention in the hypothetical case scenario. Specific personal experiences such as infertility problems, previous children with serious mental or physical problems were not correlated with the selection of different treatment choices. Of the theoretical principles studied, only the desire to preserve life at all costs was significantly associated with the choice for maximal medical treatment (p = 0.003). CONCLUSIONS: Maternal ethnocultural background and philosophical principles more profoundly influenced medical ethical decision-making than did specific personal life experiences.
机译:目的:在治疗重症新生儿时,偶尔会出现以下情况:积极的药物治疗会延长不可避免的死亡,而不是延长寿命。关于限制新生儿医学干预的决定仍然是有争议的,并且是普遍没有准备的家庭的主要责任。这项研究旨在研究孕妇对重症和/或畸形婴儿的治疗方式。设计/环境:通过综合调查问卷对态度进行研究,调查问卷分为三个部分:1-社会人口统计学数据和有关围产期问题的个人经验; 2-在做出医疗伦理决定时使用的理论哲学原理;和3种假想病例方案,并可选择治疗方案。受试者与结果:研究了六百五十名孕妇。在假设的病例中,孕产地(p = 0.005)和宗教信仰水平(p = 0.02)与最大程度地积极医疗干预的愿望密切相关。具体的个人经历,例如不育症,以前有严重精神或身体问题的孩子与选择不同的治疗方法无关。在所研究的理论原理中,只有不惜一切代价挽救生命的愿望才与最大药物治疗的选择显着相关(p = 0.003)。结论:与特定的个人生活经历相比,母亲的民族文化背景和哲学原则对医学伦理决策的影响更大。

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